Jess('s) Page

About Me

I was born on August 24th. Im currently 17 years old.

I don’t have a specific talent - Im average.

In my spare time Im on Tumblr, or volunteering. I volunteer at Mencap and a Brownie pack. Ive been volunteering at mencap for 3+years now. Its a one on one care for children with moderate to severe special needs. I spend at least one day a month there and during holidays Im there almost every day. Im told Im good at it. Which is nice.

Brownies is great fun too and I have a little fan club of girls that like to hug me and steal my attention, I recently became the first person ever in my district to achieve the Young Leader Qualification.

I hope to do SEN teaching when I get older. Thats the plan anyway.

My Dad has severe haemophilia which is a blood disorder which stops his blood from clotting completely. Without medication (injections), any small cut would mean he would bleed to death. Because of bleeding into his joints, he’s had arthritis since about 14. He has to have an operation in November this year called Ankle Fusion Surgery which will make him immobile for 3months but without the op. he won’t be able to walk in a years time. 

I’m an affected carrier which means I carry the gene for haemophilia and I also have a mild form of haemophilia. My blood takes longer to clot, I scar really easily and I have joint hypermobility syndrome. The joint hypermobility syndrome turned into a chronic pain syndrome which gives me severe pain in my knees and hips and some pain in my elbows. Sometimes the pain stops me from walking and the pain is worse at night which stops me from sleeping.

I developed a seizure disorder in 2011 and they haven’t completely gotten to the bottom of it yet. I have little twitches and things that look like shivers. They feel uncomfortable and really horrid and can hurt but they’re over in a second. 

I also have Asthma, thats new.

Outside of all this I spend my time on the internet, writing, drawing pictures, school work, doing chores and trying to do nice things.

Normally, Im a happy person and I love to make people laugh. I really want to speak to everyone so don’t be afraid to chat. I will honesty love to speak to you. Thanks for reading this. You’re sweet :)